HD Links
Huntington's Disease Society of America
The Huntington’s Disease Society of America
(HDSA) is dedicated to finding a cure for
Huntington’s Disease (HD) while providing support and services
for those living with HD and their families. HDSA promotes and
supports both clinical and basic HD research, aids families in
coping with the multi-faceted problems presented by HD and
educates the families, the public and health care professionals
about Huntington’s Disease. Our HD families give a face to
Huntington’s Disease; HDSA is its voice.
Huntington's Disease Lighthouse
The HDLighthouse mission is
to present and explain the latest research findings so that HD
families can become proactive in their care, have hope for the
future, and make good decisions in the present.
Huntington's Disease Advocacy Center
This
site's goal is to find answers for the
numerous questions that pHDs and those who give care to pHDs face.
They discuss it's effect on those who've inherited the
disease, and to try to supplement the information that your
neurologist, physician, or psychiatrist provides to you regarding
HD. They also provide a forum for those
who have offered to share their experiences regarding issues that
simply don't have "answers" but rather options to be considered such
as feeding tubes, nursing home placement and the like.
CureHD.com
There are many touching
stories and wishes for the cure on this website. Add your own wish
to the list.
Huntington's Disease Drug Works
HDDW's single goal: the
earliest possible therapeutic benefit is correctly identified and
used in individuals of this generation of Huntington's people. Make
sure to read about the trial agents.
National Research Roster for Huntington's Disease Patients and Families
The Roster is a unique
nationwide information resource dedicated to assisting scientific
research on Huntington's disease. The Roster computerizes the names
of families, including information about the history of HD in the
family (family trees) and other related data. This information
identifies HD patients and families who are interested in
participating in research projects.
