I am very happy to inform you that the FDA has just announced that they have approved the first therapy specifically for a symptom  of Huntington's Disease, Xenazine (Tetrabenazine). 

This is a great moment for our families, who have been waiting for answers to HD for a long time.  Our families should be proud that their advocacy efforts helped make a difference. We thank the developers of Xenazine for their work and perseverance, and look forward to more announcements of therapeutic approvals by the FDA in the near future. We will provide information on the future availability of Xenazine on our website (www.hdsa.org), and in our electronic and print publications as soon as details are provided to HDSA.

For more information at this time, click here for an article on Xenazine by Marsha Miller, or click here for the FDA announcement of the approval. 

While we are thrilled at this announcement this is just a first step. Let's use the excitement of this announcement as a motivation to work even harder to reach our objective of ending the devastation of Huntington's Disease.

Best Regards,

Barbara Boyle