Goals of Minnesota Chapter HDSA
- Promote and support research to find a cure for HD.
- Help those affected by the disease and their families.
- Educate the public and healthcare professionals about HD.
The Huntington's Disease Society of America is a national
non-profit voluntary health
agency that is dedicated to finding a cure for HD while providing vital services to
improve the lives of those affected by and support and guidance for HD families through
our national network of volunteer-based chapters and affiliates as well as through our
newly created Centers of Excellence.
Soon after the legendary folk singer, Woody Guthrie, lost his battle with HD, his widow
Marjorie, sought out other families affected by this devastating disease. In 1967,
this handful of dedicated volunteers formed the Committee to Combat Huntington's Disease.
Today, the Huntington's Disease Society of America continues the mission that
Marjorie Guthrie began. HDSA has grown into a national organization consisting of 32
community based volunteer chapters, two national field directors and a national office
that provides leadership, support and guidance to our HD families.
HDSA is a member of the National Health Council, National Voluntary Health Agencies,
National Organization of Rare Disorders, Alliance of Genetic Support Groups, Health Care
Quality Assurance, Independent Sector and International Huntington Association.
Medical Support
Huntington’s Disease Center of
Excellence
Hennepin County Medical
Center
701 Park Avenue
Minneapolis, MN 55415
(612) 873-2515
www.hcmc.org/Depts/hd/hdhome.htm
Minnesota Nursing Homes with HD units
Good Samaritan Society, University Specialty
Center
Huntington's Disease Unit
22 - 27th Avenue Southeast
Minneapolis, MN 55414
(612)
673-6260 Admissions Coordinator
(612) 673-6296 HD Unit Social Worker
Red Wing Care Center
Red Wing, MN
Contact: Lynn Held, Social worker
(651) 388-2843
This
nursing home has HD residents within their young adult unit.
For help accessing these
nursing homes or group homes in the community, please email our chapter
social worker, Jessica Hancock
or call the Helpline.
Inservices
The HDSA Chapter Social Worker can provide
training and education to people interested in
HD. Maybe your clinic or nursing home needs more understanding of the
disease. Maybe you're a member of a community group who's interested in
more information. If you would like to schedule an inservice, contact
Jessica Hancock at
jhancoc1@good-sam.com.
